Other publications
The following end of life care related publications are all published by other organisations and are organised by topic. These will be added to over time.
Cancer
Dementia
Ethnic minority populations
General service providers
Health services provision
Research methods
Palliative care
Social care
Spend on end of life care
Suicide
Cancer
More than a million - Understanding the UK's carers of people with cancer (report) (Ipsos MORI and Macmillan Cancer Support, 2011)
Geographic patterns of cancer survival in England (Office for National Statistics Statistical Bulletin, 2011)
Where do patients with blood cancer die? (National Cancer Intelligence Network, 2011)
Data briefing from the NCIN, which shows that, compared to other cancers, more patients with haematological cancer die in hospital than at home or in a hospice.
Where do cancer patients die? The varying provision of end of life care to cancer patients in the West Midlands (West Midlands Cancer Intelligence Unit, 2011)
Advance care planning for cancer patients in primary care: a feasibility study (National Center forBiotechnology Information, 2010)
End of Life Care for Cancer Patients in the South West: Trends in hospital care, place and cause of death summary (SWPHO, 2009)
Dementia
Living with dementia and making decisions (Economic and Social Research Council, 2011)
Dementia Care in London (Institute for Public Policy Research, 2011)
National Audit of Dementia (Care in General Hospitals). (Royal College of Psychiatrists‟ Centre for Quality Improvement, 2010)
National Audit of Demetia (Care in General Hospitals) (National Audit of Dementia Team, 2010)
Counting the cost: Caring for people with dementia on hospital wards (Alzheimer's Society, 2009)
Ethnic minority populations
Older BME People and Financial Incusion Report - The future ageing of the ethnic minority population of England and Wales (Runnymede and the Centre for Policy on Ageing, 2010)
General service providers
Improving housing with care choices for older people: an evaluation of extra care housing (Personal Social Services Research Unit, 2011)
The state of health care and adult social care in England (Care Quality Commision, 2011)
Health services provision
Critical success factors that enable individuals to die in their preferred place of death (National End of Life Care Programme, 2012)
Care of older people let down by low staffing levels (Royal College of Nursing, 2012)
End of life care for adults quality standard (National Institute for Health and Clinical Excellence, 2011)
Inside your hospital (Dr Foster Intelligence, 2011)
Close to home: An inquiry into older people and human rights in home care (Equality and Human Rights Commission, 2011)
Home care in London (Institute for Public Policy Research, 2011)
Trajectories of End-of-Life Care in the Emergency Department (School of Nursing, 2010)
Supporting the dementia family caregiver: the effect of home care intervention on general well-being (Centre for Reviews and Dissemination, 2010)
The Quality of Death: Ranking end-of-life care across the world (Economist Intelligence Unit, 2010)
An Age Old Problem (NCEPOD, 2010)
Dying for Change (Demos, 2010)
New end of life care service brings benefits for patients and health service (Department of Health, 2010)
Information and Communication on the End of Life Care Pathway (SWPHO, 2009)
End of Life Care, November 2008 (National Audit Office, 2008)
Palliative care
Specialist Palliative Care Workforce Survey (The National Council for Palliative Care, 2011)
Shape of the Medical Workforce: Informing medical training numbers and Palliative Care factsheet (Centre for Workforce Intelligence, 2011)
Palliative Care Funding Review final report (Palliative Care Funding Review Team, 2011)
Transitions to palliative care in acute hospitals in England: qualitative study (BMJ 2011;342:d1773doi:10.1136/bmj.d1773)
Choice and decision-making in palliative care: a study of patients’, carers’ and health care professionals’ experiences (Queens Medical School)
Palliative Care Funding Review, Interim Report, 2010.
Research methods
End of Life Care: Methods Review (School for Social Care Research, London School of Economics and Political Science, 2012)
Social care
Persistent challenges to providing quality care (Royal College of Nursing, 2012)
Health care in care homes (Care Quality Commission, 2011)
Health Committee - Fourteenth Report: Social Care (Health Committee, 2012)
Care in crisis 2012( Age UK, 2012)
Older Londoners (Institute for Public Policy Research, 2011)
Adult Social Care (The Law Commission, 2011)
Social care funding and the NHS: an impending crisis? (The King's Fund, 2011)
Care and compassion? - Report of the Health Service Ombudsman on ten investigations into NHS care of older people February (Parliamentary and Health Service Ombadsman, 2011)
Evaluating effectiveness of the GSFCH and LCP in care homes (End of Life Care, 2010)
Social care and hospital use at the end of life, December 2010 (The Nuffield Trust, 2010)
Using the Gold Standards Framework in Care Homes: An Evaluation of the Phase 2 programme (School of Health Sciences, University of Birmingham, 2007)
Longitudinal Study of Elderly People Admitted to Residential and Nursing Homes: 42 months on (Department of Health, 2000)
Spend on end of life care
End of Life Care Strategy - monitoring investment, 2010/11 (Department of Health, 2011)
Suicide
Suicide and Self-Harm in the South West (South West Public Health Observatory, 2011)