Publications

See also the Public Health England website.

Publications commissioned by the NEoLCIN and other major organisations, including key reports on the growing evidence base for end of life care can be found here. You can also follow the links to end of life care research organisations, whose websites feature sections dedicated to publications on end of life care.

We will be adding to this list and if you have any suggestions for publications you feel we should include, please don't hesitate to let us know by emailing neolcin at phe dot gov.uk link neolcin@phe.gov.uk .

National End of Life Care Intelligence Network publications

Specific disease reports

Overview reports

Technical guidance

Partnership reports

National information standard resources

What we know now

Consultations

Other reports


New 

Electronic Palliative Care Co-ordination Systems National Data Project

Dying with Dementia


Specific disease reports

Deaths from Alzheimer's Disease, Dementia and Senility in England 

Deaths from cardiovascular diseases: Implications for end of life care in England

Deaths from liver disease: Implications for end of life care in England

Deaths in Older Adults in England 

Deaths from Neurodegenerative Diseases in England, 2002 to 2008

Deaths from Renal Diseases in England, 2001 to 2008

Deaths from Respiratory Diseases: Implications for end of life care in England

Deaths from Urological Cancers in England, 2001-10

Dying with Dementia

Head and neck cancers in England: who dies from them and where do they die?


Overview reports

Ambulance Data Project for End of Life Care

Deaths Registered as Occurring Elsewhere

Deprivation and Death: Variation in place and cause of death

Developing data and intelligence for end of life care

Electronic Palliative Care Co-ordination Systems (EPaCCS) in England

Electronic Palliative Care Co-ordination Systems National Data Project

External Causes of Death

Patterns of end of life care in England, 2008 to 2010

Predicting Death: Estimating the proportion of deaths that are 'unexpected'

Variations in Place of Death in England 


National information standard resources

Palliative Care Co-ordination Implementation Guidance

Palliative Care Co-ordination Record Keeping Guidance

Palliative Care Co-ordination Summary Record Keeping Guidance 


Technical guidance

Classification of place of death: A technical bulletin from the National End of Life Care Intelligence Network 


Partnership reports

Local Preferences and Place of Death in Regions within England 2010

National Survey of Patient Activity Data for Specialist Palliative Care Services (2010-2011)

National Survey of Patient Activity Data for Specialist Palliative Care Services (2011-2012)

National Survey of Patient Activity Data for Specialist Palliative Care Services 2012/13

National Survey of Patient Activity Data for Specialist Palliative Care Services 2013/14

National Survey of Patient Activity Data for Specialist Palliative Care Services 2014/15

NCPC Specialist Palliative Care Workforce Survey 2013 

Palliative and end of life care for Black, Asian and Minority Ethnic (BAME) groups in the UK

Understanding patterns of health and social care at the end of life 


What we know now

What we know now 2014

What do we know now that we didn't know a year ago?: New intelligence on end of life care in England (2012)

What we know now 2013: New information collated by the National End of Life Care Intelligence Network 


Consultations

Consultation on proposed individual-level data collection from specialist palliative care

Palliative Care Co-ordination: core content Consultation Report


Other reports

Annual activity update 2014

National End of Life Care Intelligence Network's impact evaluation

NEoLCIN one-year on brochure

 

End of Life Care Profiles
Resources
Data Sources
Advice and information
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