See also the Public Health England website. 

Delivering high quality end of life care for people who have a learning disability

16 August 2017

NHS England, in partnership with the Palliative Care for People with Learning Disabilities (PCPLD) Network, have published ‘Delivering high quality end of life care for people with a learning disability’. This provides resources and tips for commissioners, service providers and health and social care staff.

Results of a national survey of support to adult care homes in England: A specialist palliative care provider perspective

9 August 2017

This survey of organisations providing specialist palliative care services to care homes highlights the good work they do and identifies the key challenges they face. The report, commissioned by Public Health England, undertaken by the Marie Curie Research Centre at Cardiff University, with input from the National Council for Palliative Care and Hospice UK, examines the role of specialist palliative care in providing support to care homes in England.

The report can be downloaded from the Ambitions for Palliative and End of Life Care website.

End of Life Care data to inform Sustainability and Transformation Partnerships

17 July 2017

Public Health England in partnership with NHS and CQC present key data about end of life care to assist Sustainability and Transformation Partnerships (STPs) as they develop their plans for services.

PHE have published the data supplied to this project as a spreadsheet and metaguide. The spreadsheet includes the most recently available data 25 indicators presented at STP and CCG level, and includes the number of deaths, the age, cause and place of deaths, data describing hospital admissions near the end of life together with information on the number of care home beds and use of palliative care registers by GP practices.

This information will be of use to end of life care commissioners and care providers and can contribute to identifying best practice and local priorities for action.

NEoLCIN’s End of Life Care Profiles and the Economic Tool Webinar

17 July 2017

On 12 July 2017 we held a webinar alongside NHS England’s End of Life Care (EoLC) team. This webinar gave an introduction to the National End of Life Care Intelligence Network’s EoLC Profiles and the EoLC Economic Tool. It was led by Nicola Bowtell and Andy Pring (PHE) and Louise Corson (NHS England). The session demonstrated how local commissioners and service providers can use the NEoLCIN tools to inform local service planning decisions. Data tools demonstrated included the EoLC Profiles and the recently published Health Economic Tool. Download the recording

NEoLCIN deliver a presentation on Public Health Approaches to End of Life Care

17 July 2017

Nicola Bowtell gave a talk on public health approaches to end of life care at a Westminster Briefing Conference on the 22 June - “Improving End of Life Care: Providing a Compassionate & Coordinated Approach” . The slides for this event are now available on the website.

Future end of life care webinars

17 July 2017

We are pleased to announce that the NEoLCIN will host a number of End of Life Care (EoLC) webinars throughout 2017/18 with our colleagues in NHS England. Future planned webinars include:

  • Electronic Palliative Care Co-ordination Systems Evaluation (10 October 2017)
  • Atlas of Variation EoLC (9 January 2018)
  • Compassionate Communities (6 February 2018)
  • EoLC and Older People/Care homes (6 March 2018)

We will provide further information on these webinars in future editions of our e-alert.

Developing an Asset Based Approach

5 July 2017

Health Education England (HEE) has been working with the National Council for Palliative Care (NCPC) to create a practical guide to help organisation extend the asset based approach already used in end of life care into a learning and development model.

An asset based approach involves a community coming together mapping their assets and capacity, building relationships, developing a common vision for the future and leveraging internal and external resources to support actions to achieve it. It will help to improve capacity, reliance and sustainability, as well as reduce the need to buy in solutions from outside of the community. 

‘Developing an Asset Based Approach Within a Learning Community – Using End of Life Care as an Example’ provides detail on what an asset based approach can look like and what factors need to be in place, incorporating lessons learnt and tips from those who have already explored the approach.

Download the report Developing an Asset Based Approach.

15th World Congress of the European Association for Palliative Care (EAPC)

12 June 2017

Professor Julia Verne attended the EAPC conference in Madrid in May. She gave an oral presentation — ‘The Effect of Planned Care on End-of-Life Outcomes and Costs in Liver Disease Patients with Diuretic Resistant Ascites. A Retrospective Cohort Study of Deaths in England’. The NEoLCIN also gave 6 poster presentations:

  • Care homes and end of life care in England
  • Atlas of Variation in End of Life Care for England—largest of its kind in the world
  • Variation in place of death for leading causes of death, England (2015)
  • Variation in number and lengths of hospital admissions in the last 90 days of life by local health administration geographies across England
  • Palliative care for people with intellectual disabilities in England: How much happens, how much is needed?
  • Delivering supportive and palliative care in advanced liver disease across the UK. A mixed methods study of Hepatologists’ perceptions, current service provision and future challenge

 These can all be downloaded from this website. Our poster ‘Care homes and end of life care in England’ won a Rosset for Best in Class.

Significant Reduction in Deaths in Hospital Over a Decade in an Increasingly Elderly Population Dying From Pelvic Cancer in England: A Population Based Study

12 June 2017

The NEoLCIN team alongside Gloucestershire Hospitals have published a paper looking at pelvic cancer and end of life care.

NCPC publish new information for commissioners

12 June 2017

NCPC have published ‘Best Practice in care coordination for palliative and end of life care services: information for commissioners’. This is an information resource to support commissioners in designing and contracting optimal care coordination system for their local areas.

Cancer Registration Statistics, England: First Release 2015

22 May 2017

PHE and the Office for National Statistics have published cancer diagnoses and age-standardised incidence rates for England, for all cancer sites by age and sex. The results show that cancer incidence is increasing on the whole, with breast, prostate, lung and bowel cancer being the most common types.

Hospice UK and NCPC publish ‘No painful compromise’

22 May 2017

A new report has been published ‘No painful compromise: A guide for commissioners and providers to improve pain management for dying people at home’.

Shining a spotlight on inequality—Nicola Spencer and Professor Bee Wee

February 2017

In February, NHS England’s End of Life Care team hosted a webinar on the topic of Health Inequalities in Palliative and End of Life Care. Unsurprisingly, given the high levels of interest in this topic, the webinar was heavily oversubscribed.

Nicola Spencer, Programme Support Manager for End of Life Care and Professor Bee Wee, National Clinical Director for End of Life Care have co-written a follow-up blog on the subject of health inequalities in palliative and end of life care, which also contains a link to the webinar recording. For more information, please contact

Cancer Registration Statistics, England: First Release 2015

February 2017

PHE and the Office for National Statistics have published cancer diagnoses and age-standardised incidence rates for England, for all cancer sites by age and sex. The results show that cancer incidence is increasing on the whole, with breast, prostate, lung and bowel cancer being the most common types.

Joint statement on the minimum data set for specialist palliative care services

16 February 2017

Public Health England (PHE), the National Council for Palliative Care (NCPC) and Hospice UK regret to announce that the National Minimum Data Set collection for Specialist Palliative Care Services (MDS) will no longer be collected with effect from 31 March 2017. The reasons are partly financial, but perhaps more importantly, in order to remain relevant, the MDS would need extensive review and change. As it currently stands, it is not giving us the information we need at the right level. We know that this may come as disappointing news to many people working or interested in specialist palliative care. The purpose of this joint statement is to explain these reasons in more detail and what follows from it.  

Cost-effective commissioning of end of life care

9 February 2017

The National End of Life Care Intelligence Network and Health Economics team in PHE have published a number of products to support commissioning decisions for end of life care services.  These include:

A report ‘Understanding the health economics of palliative and end of life care’. The first half of the report presents the findings of a review of the available literature on the costs and effectiveness of different initiatives and schemes designed to improve patients and carers experiences at the end of the patient’s lives. The second half of this report describes the new end of life care economic tool and the methodology underpinning this tool.

An end of life care analytical tool. This interactive tool is made up of two components. The first provides a summary of the costs, impacts and wider issues associated with different interventions and services for providing care and support for patients at the end of their lives. The second component enables the user to explore the potential trade-offs associated with shifting resources and activity away from secondary care into primary, community and social care settings.

The end of life care analytical tool user guide. This document provides a step-by-step guide to the end of life care economic tool.

These products will be of great importance for decision-makers. They will help them when they are considering the potential improvement, or indeed the potential decline, in the quality and safety of care, and patient experience, in conjunction with the net financial implication, when considering the implementation of interventions. Moreover, they will assist stakeholders when looking at current capacity of care provision and whether it can adequately cope with a potential influx of primary, community and social care activities for end of life care.

Download the report, analytical tool and user guide.


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