See also the Public Health England website.
NHS Improving Quality’s new ‘Lessons learned’
19 August 2014
NHS Improving Quality have produced a new resource ‘Lessons Learned’ to support organisations planning implementation of an Electronic Palliative Care Co-ordination System (EPaCCS).
The document provides useful tips and information which has been collated from their intelligence networks and from working with sites who are currently implementing an EPaCCS system. Project leads provided insight from their experience and reflections on what they should or could have done.
Download Lessons Learned from their website.
New end of life guide from Motor Neurone Disease Association
14 August 2014
The motor neurone disease association has launched a new publication, End of life: a guide for people with motor neurone disease. The new guide provides comprehensive and candid information on how to plan ahead, in response to feedback from people with or affected by MND.
Download the new guide from their publications page.
Care plans in the paperless NHS consultation
5 August 2014
The Health and Social Care Information Centre (HSCIC) is currently consulting on the need for a new national information standard for care plans to improve the exchange of care information across health and adult social care. Note that care plans may be referred to as treatment plans, intervention plans, management plans and similar. They include palliative and end of life care plans as well as those for long term conditions.
The consultation is aimed at all users of care plans including health and social care providers, nursing staff and other clinicians, allied health and social care professionals.
The closing date for feedback is 29 August 2014.
Find out more about this consultation.
A national review of choices in end of life care - consultation
4 August 2014
The Government has set up a review of choices in end of life care. The review is being undertaken by an independent programme board, chaired by Claire Henry, the Chief Executive of the National Council for Palliative Care (NCPC). The information gathered will outline the kinds of choices that people would like to be able to make at the end of life and information about the funding, systems and processes that would be needed to enable choices to be acted upon.
A consultation on the review has now opened. To ensure the review is as comprehensive as possible, it is vitally important that a wide range of people are consulted about the choices that are important to them at the end of life, what they would mean in practice and whether and how they could be made a reality.
For more information and to take part in the consultation, see the NCPC website. This has links to the consultation survey, a downloadable printable response form (for postal responses) and also links to the events page where people can book online to attend consultation events to be held in Leeds and London.
National survey of bereaved people (VOICES), 2013 published
17 July 2014
The Office for National Statistics has published the results of this year's VOICES survey, commissioned by NHS England.
The statistical bulletin reports on the national results and provides comparisons with findings from the 2011 and 2012 VOICES surveys.
Key findings are:
- overall, quality of care has not changed significantly between 2011, 2012 and 2013
- quality of care was rated significantly lower for people who died in a hospital, compared to people dying at home, in a hospice or care home
- for those dying at home, the quality of coordination of care was rated significantly lower in 2013 compared to 2012
- the dignity and respect for patients shown by hospital nurses and hospice nurses has increased between 2011 and 2013
- pain is relieved most effectively in the hospice setting (62%) and least effectively at home (18%)
- only one third of people (35%) who express a preference to die at home, actually die at home.
For more information, visit the Office for National Statistics website.
Expanding choice and improving the quality of end of life care
3 July 2014
A review of choice in end of life care has been launched to make sure adults at the end of life, their carers and family have more choice.
The review will be undertaken by an independently-led programme board chaired by Claire Henry, Chief Executive of the National Council for Palliative Care (NCPC) which is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland.
The review is a significant milestone in the government’s commitment to increasing choice in end of life care and will look at a variety of different aspects including what people want, the support they need and the services required to make choice a reality.
For more information view the full news item, or visit www.ncpc.org.uk or www.dyingmatters.org
Results of the National End of Life Care Intelligence Network’s impact evaluation
1 July 2014
PHE’s National End of Life Care Intelligence Network (NEoLCIN) has published the results of an impact evaluation of the network undertaken earlier this year. We sought views from a wide range of users and stakeholders on the perceptions, resources and impact the network has made since it started in 2010. A slide set summarises the key points. It is published alongside the main report and a document summarising our response to the feedback received.
View the Summary of results
View the Impact evaluation report
View the NEoLCIN's response and what we will do
If you have any further comments, please email firstname.lastname@example.org. We would also be delighted to hear about how you have used our data, tools and resources to help you in your work. Please send details to email@example.com.
New approach to care of the dying published
26 June 2014
A report, published today by the Leadership Alliance for the Care of Dying People, sets out a new approach to care of the dying in England based on the needs and wishes of the person and those close to them. It takes the form of five new Priorities for Care which replace the Liverpool Care Pathway as the new basis for caring for someone at the end of their life.
The priorities form part of the Alliance’s overall response, called ‘One Chance to Get it Right’, to an independent review of the Liverpool Care Pathway led by Baroness Neuberger.
Public Health England (PHE) is one of the 21 organisations that make up the Alliance, all of whom have committed today to support the Priorities for Care.
Professor Julia Verne, Clinical Lead for PHE’s National End of Life Care Intelligence Network said:
“Public Health England’s role is to protect and improve the nation’s health and to address inequalities through working with national and local government, the NHS, industry and the voluntary and community sector. We consider high quality care for dying people and their families to be an important public health issue. We are fully committed to the five Priorities for Care published by the Leadership Alliance for the Care of Dying People today and to improving care in the last few days and hours of life for people in England.
“We will do this by providing high quality information about end of life care to underpin the work of policy makers, commissioners, service providers and professionals, as well as to inform dying people and their families and contribute to a national conversation about dying. This includes the continuing work of the National End of Life Care Intelligence Network. We are also committed to examining ways to develop community approaches to support dying people and their families.”
For more information, and to download the report and commitment statements, see the Department of Health web pages.
New Mental Health Dementia and Neurology Intelligence Networks
18 June 2014
PHE launches a new health intelligence network in partnership with NHS England, supported by the Department of Health and key stakeholders.
The National Mental Health Dementia and Neurology Intelligence Networks, consisting of 4 pilot profiling tools, will support the delivery of improved physical and mental wellbeing services in local areas and reduce the negative impacts of ill health.
The Networks operate collectively and will provide commissioners, local decision makers and other health professionals with authoritative intelligence, research and evidenced best practice using the PHE Fingertips platform.
Visit the Mental Health Dementia and Neurology Intelligence Network
Report on deaths from head and neck cancers in England
11 June 2014
PHE’s National End of Life Care Intelligence Network has published a new report examining who dies from head and neck cancers and where they die. Head and neck cancers include lip, tongue and oral cavity cancer, pharynx and tonsil cancer, larynx cancer, thyroid gland cancer, salivary glands cancer, nose, ear and sinus cancer. The aim of this report is to help end of life care commissioners and providers improve planning and service delivery in line with the needs and wishes of the patient.
For more information, see Head and neck cancers in England: who dies from them and where do they die?
Download the report Head and neck cancers in England: who dies from them and where do they die?
Find out what the National End of Life Care Intelligence Network has been doing over the last year
10 June 2014
PHE’s National End of Life Care Intelligence Network (NEoLCIN) has published its first annual activity update. The NEoLCIN was established in 2010 to improve the data and intelligence available to support the NHS and its partners commission and deliver quality end of life care. The update provides a summary of activity across the network over the last year.
For more information, see Annual activity update 2014
Download the update Annual activity update 2014
Specialist palliative care services lead to more deaths at home
3 June 2014
Specialist palliative care services in the community are continuing to lead to more people being able to die at home, according to a new report from the National Council for Palliative Care (NCPC) and Public Health England.
Latest figures from the new report, National Survey of Patient Activity Data for Specialist Palliative Care Services, Minimum Data Set for 2012-2013 (MDS), show that nearly half the people receiving specialist palliative care in the community (46.2%) died in their own home – the place where most people say they want to die. This compares with just over one in five (21.8%) nationally.
The MDS report also finds that nearly half (45%) of the people referred to a specialist palliative care inpatient service are discharged. Of these the majority (85%) were discharged to their home, dispelling the myth that people only go into a hospice to die.
View the NCPC media release
Download the report National Survey of Patient Activity Data for Specialist Palliative Care Services
National care of the dying audit of hospitals, England - new report published
16 May 2014
A joint report by the Royal College of Physicians and Marie Curie Cancer Care provides a comprehensive national review of the care given to more than 6,500 people who died last year in 149 hospitals.
For more information see their website or view the full report National care of the dying audit for hospitals, England
View the executive summary
Marie Curie publishes new mini-Atlas containing the new CCG level data
6 May 2014
Marie Curie has published a new mini-Atlas containing the new CCG level data to complement the original Marie Curie End of Life Care Atlas published in October 2012. The mini-Atlas incorporates the lastest VOICES data and reports at CCG Level.
New end of life care profiles for clinical commissioning groups
28 April 2014
The National End of Life Care Intelligence Network (NEoLCIN) has published end of life care profiles for clinical commissioning groups (CCGs) for the first time. The profiles draw together a wide range of information to give an overview of variations in cause and place of death, by age and sex, for each CCG in England.
For more information and to view the profiles, see End of life care profiles for CCGs
Also published by the NEoLCIN today: Patterns of end of life care in England, 2008 to 2010 report, which highlights patterns in end of life care by Public Health England region and centre.
New report on electronic palliative care co-ordination systems (EPaCCS) in England
28 April 2014
The National End of Life Care Intelligence Network and NHS Improving Quality have published the results of a 2013 survey of clinical commissioning groups on the implementation of EPaCCS in England. The report highlights progress and challenges and sets out recommendations and next steps.
For more information and to download the report, see: Electronic Palliative Care Co-ordination Systems (EPaCCS) in England.
Leadership Alliance for the Care of Dying People second interim statement published
20 March 2014
A further interim statement has been issued by the LACDP and reflects feedback received as a result of widespread engagement with professionals and families. This is specifically intended for health and care professionals involved in end of life care and provides further direction in the run up to the Liverpool Care Pathway being phased out by 14 July 2014.
The statement is published online.
For any queries or for further clarification in relation to the latest interim statement, or if you have any further suggestions around this work that you would like to feedback to the Alliance, please email england.lacdp.enquiries at nhs dot net link
Adult social care in England: overiew
20 March 2014
The provision of adequate adult social care poses a significant public service challenge. Demand for care is rising while public spending is falling.
The post Adult social care in England: overview appeared first on National Audit Office.
Supporting care integration with Electronic Palliative Care Co-ordination Systems (EPaCCS)
6 March 2014
Katie Lindsey (Programme Manager for NEoLCIN) and Anita Hayes (NHS Improving Quality) have written an article which has appeared in the International Journal of Palliative Nursing on 28 February 2014. Subscription required to access the article.