News

See also the Public Health England website. 

Joint statement on the minimum data set for specialist palliative care services

16 February 2017

Public Health England (PHE), the National Council for Palliative Care (NCPC) and Hospice UK regret to announce that the National Minimum Data Set collection for Specialist Palliative Care Services (MDS) will no longer be collected with effect from 31 March 2017. The reasons are partly financial, but perhaps more importantly, in order to remain relevant, the MDS would need extensive review and change. As it currently stands, it is not giving us the information we need at the right level. We know that this may come as disappointing news to many people working or interested in specialist palliative care. The purpose of this joint statement is to explain these reasons in more detail and what follows from it.  


Cost-effective commissioning of end of life care

9 February 2017

The National End of Life Care Intelligence Network and Health Economics team in PHE have published a number of products to support commissioning decisions for end of life care services.  These include:

A report ‘Understanding the health economics of palliative and end of life care’. The first half of the report presents the findings of a review of the available literature on the costs and effectiveness of different initiatives and schemes designed to improve patients and carers experiences at the end of the patient’s lives. The second half of this report describes the new end of life care economic tool and the methodology underpinning this tool.

An end of life care analytical tool. This interactive tool is made up of two components. The first provides a summary of the costs, impacts and wider issues associated with different interventions and services for providing care and support for patients at the end of their lives. The second component enables the user to explore the potential trade-offs associated with shifting resources and activity away from secondary care into primary, community and social care settings.

The end of life care analytical tool user guide. This document provides a step-by-step guide to the end of life care economic tool.

These products will be of great importance for decision-makers. They will help them when they are considering the potential improvement, or indeed the potential decline, in the quality and safety of care, and patient experience, in conjunction with the net financial implication, when considering the implementation of interventions. Moreover, they will assist stakeholders when looking at current capacity of care provision and whether it can adequately cope with a potential influx of primary, community and social care activities for end of life care.

Download the report, analytical tool and user guide.


Survey: We want you to tell us how you support care homes to provide end of life care

9 January 2016

NEoLCIN in collaboration with National Council for Palliative Care, Hospice UK, Marie Curie Palliative Care Research Centre and Cardiff University are working together to find out how care homes are supported to deliver end of life care to residents.

We are conducting a supplementary survey linked to the Minimum Data Set (MDS) for specialist palliative care providers that will increase our understanding of:

  • the current geographical spread of services provided by Specialist Palliative Care Units (SPCUs) to adult care homes in England and Wales
  • the level of clinical support, education and training provided by SPCUs to adult care homes in England and Wales

The survey closes at 5pm on Monday 23 January 2017.

The survey results will be published in Spring 2017 providing a baseline for future developments across this important area of care.

Survey is now closed


Public Health England and NHS England publish an evaluation of the palliative care clinical data set

14 December 2016

Public Health England and NHS England have published two new reports; Evaluation report and the Guidance and definitions report on the Palliative Care Clinical Data Set.

These reports present a new voluntary data set for specialist palliative care (SPC) services and the processes which have underpinned its development. They describe the process and its impact on providers on implementing a specialist palliative care clinical data set. The data set supports both the recording of palliative care currencies for commissioning, and the use of Outcome assessment and complexity collaborative (OACC) monitoring tools for driving local improvement of clinical care.

Evaluation report

This Evaluation report presents the story of pilot work to collect data about outcomes achieved for individuals by specialist palliative care services. It contains the lessons learned within the project and makes recommendations for the future. Download the report: Palliative care clinical data set Evaluation report

Guidance and definitions

The palliative care clinical data set presented in this document describes a set of data items that can be implemented voluntarily. It specifies the conditions for collecting this data in a way that enables systematic and standardised measurement, analysis and comparison of some of the key outcomes that matter most to people who receive specialist palliative care.  Download the report: Palliative care clinical data set Guidance and definitions

Both reports should be read alongside each other.


Electronic Palliative Care Co-ordination System (EPaCCS)

National Data Project

5 December 2016

EPaCCS enable the recording and sharing of people’s care preferences and key details about end of life care.

Last year NEoLCIN undertook a study to better understand the impact of EPaCCS nationally, look at geographical variations in EPaCCS data, understand the potential challenges/barriers and opportunities associated with collating EPaCCS data. The study also explored the effectiveness of EPaCCS in achieving people’s preferences for care and supporting the co-ordination of care and advance care planning.

Key findings from the study include:

  • more than one-third of people on EPaCCS are aged 85 and over with a further 44% aged 65 to 74 years
  • just over half (56.5%) are female
  • cancer is the most common diagnosis for patients on EPaCCS; patients often hadmultiple diagnoses
  • one-third of patients on EPaCCS dies at home and under 20% died in hospital
  • of patients expressing a preferred place of death, half preferred to die at home; of these 30% died in their preferred place of death (home)
  • data completeness for any given item of information ranged from over 90% to under 1%

Download the report Electronic Palliative Care Co-ordination Systems National Data Project.


New survey launched today: We want you to tell us how you support care homes to provide end of life care

1 December 20216

NEoLCIN in collaboration with National Council for Palliative Care, Hospice UK, Marie Curie Palliative Care Research Centre and Cardiff University are working together to find out how care homes are supported to deliver end of life care to residents.

We are conducting a supplementary survey linked to the Minimum Data Set (MDS) for specialist palliative care providers that will increase our understanding of:

  • the current geographical spread of services provided by Specialist Palliative Care Units (SPCUs) to adult care homes in England and Wales
  • the level of clinical support, education and training provided by SPCUs to adult care homes in England and Wales

The survey closes at 5pm on Friday 6 January 2017.

 

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