News

See also the Public Health England website.

Quality of Life research funding call

3 August 2015

The Brain Tumour Charity have recently launched their Quality of Life research funding call. They are seeking applications and are happy to consider applications looking at end of life issues. The closing date for response is Monday 12 October 2015.

More information is available from their website.


 

NICE consults on draft guidance to help the NHS care for us in our last few days of life

29 July 2016

The National Institute for Health and Care Excellence (NICE) has today published a draft guideline to support the NHS in providing high quality and compassionate care for people who are dying. PHE welcomes this as an important adjunct to improving end of life care. The NICE guideline will help doctors and nurses identify when an individual is entering their final days of life and includes recommendations on the management of common symptoms, clear communication and medication prescribing.

For more information view the NICE press release.


Cancer Taskforce publishes Cancer Strategy

27 July 2015

Six strategic priorities have been recommended by the Independent Cancer Taskforce to help the NHS achieve world-class cancer outcomes:

  1. A radical upgrade in prevention and public health.
  2. A national ambition to achieve earlier diagnosis.
  3. Patient experience on a par with clinical effectiveness and safety.
  4. Transformation in support for people living with and beyond cancer.
  5. Investment to deliver a modern high-quality service.
  6. Overhauled processes for commissioning, accountability and provision.

Duncan Selbie, chief executive of Public Health England, said:

“Four in ten cancers are preventable and without concerted action on risk factors like smoking, alcohol and diet, cancer will spread even greater misery to those affected. The Cancer Taskforce rightly state that we need a radical upgrade in prevention and public health.

“PHE plays a critical role in the national response to cancer, including providing the data and intelligence on which the NHS depends, and we warmly welcome the Taskforce’s report. We look forward to considering the recommendations, especially the action plans to reducesmoking and tackle obesity, in detail, and working with our partners to realise the vision of a society that is serious about prevention.”

Download Achieving World-class Cancer Outcomes. A strategy for England 2015-2020.


Results of the 2014 National Survey of Bereaved People

10 July 2015

The Office for National Statistics (ONS) have published their 2014 report for the annual National Survey of Bereaved People (VOICES).

Visit the ONS website.


New end of life care profiles for clinical commissioning groups

6 July 2015

The National End of Life Care Intelligence Network (NEoLCIN) has updated the end of life care profiles for clinical commissioning groups (CCGs). The profiles have been updated with new data for 2011-2013 and draw together a wide range of information to give an overview of variations in cause and place of death, by age and sex, for each CCG in England. 

For more information and to view the profiles, see End of life care profiles for CCGs


What we know now 2014

26 June 2015

The National End of Life Care Intelligence Network has published a new report, the third in a series. ‘What We Know Now 2014’ summarises the key findings of the network and its partners over the last year, bringing information together in one report for the first time. The report shows a growing understanding within the health sector of what is important to people at the end of life and confirms that the number of people dying at home and in care homes continues to rise.

Download the report, What we know now 2014

View the media release


Rise in patient numbers for specialist palliative care

3 June 2015

Increasing numbers of people are accessing specialist palliative care across all settings - especially community-based services - according to a new report out today from the National Council for Palliative Care, Public Health England and Hospice UK.

Latest figures from the authoritative Minimum Data Set for Specialist Palliative Care (MDS) for 2013-14 show that the average number of patients per service has risen for all specialist palliative care settings and service types by since 2008.

Community care specialist palliative services in particular are seeing increasing numbers of people, in line with moves to enable more people to be cared for at home. Dementia is becoming an increasing issue for community care specialist palliative care teams, with five times as many people with dementia accessing community services in 2013/14 compared with 2008/09. The proportion of older people (aged 85 and older) seen by community teams has also continued to increase, as it has for hospital support teams.

View the NCPC Media release.

Download the report from the NCPC website.


Feedback requested on the national survey of the bereaved (VOICES)

20 May 2015

NHS England is responsible for commissioning a national survey on the quality of care in the last three months of life. The survey, Views of Informal Carers – Evaluation of Services (VOICES) collects information on bereaved peoples’ views on the quality of care provided to a relative or friend in the last three months of life, for England.

NHS England is seeking views on the current VOICES survey. They have set out specific areas which they are keen to get views on but have also left a section open for people to feedback comments or ideas more generally. You can respond to all or just one/a small number of questions.

The consultation is open to anyone who has an interest in this area.

The consultation will run from Friday 27th March until Friday 19th June 2015.

To take part in the consultation.


Dying Matters Awareness Week

18-24 May 2015

Every year in May, Dying Matters and their coalition members host a fantastic range of events and activities around the country with the aim of getting people talking about dying, death and bereavement and making plans for their end of life. This year is the sixth annual Dying Matters Awareness Week, which runs from 18 - 24 May 2015.

Find out how you can support this week of awareness-raising here.


National Council for Palliative Care – Public Opinion on death and dying

20 May 2015

Millions of people in Britain risk missing out on having their end of life wishes met and leaving their affairs in a mess for their families to sort out because they haven’t planned for their death, according to a new study released by the Dying Matters Coalition

ComRes research finds that although the majority of us think it is more acceptable to talk about dying now than it was 10 years ago, discussing dying and making end of life plans remains a taboo, as a majority think that people in Britain are uncomfortable discussing dying, death and bereavement.

Visit the National Council for Palliative Care’s website.


Dying without dignity

20 May 2015

The Parliamentary and Health Service Ombudsman has investigated complaints about end of life care and have issued a report. The short report features 12 cases that illustrate the issues they regularly see in their casework on end of life care. The examples represent a diverse collection of powerful stories, drawn from a range of different health care settings. They are from all parts of the country and represent different areas of concern.

Find more information and download the report.


Equity in the Provision of Palliative Care in the UK: Review of Evidence

18 May 2015

The Personal Social Services Research Unit (PSSRU) at the London School ofEconomics and Political Science (LSE) was commissioned by Marie Curie to explore theevidence on equity in palliative care and to consider the economic implications of extendingpalliative care to those currently under-served. This report presents the findings from atheir review of the research literature and nationally available data, and new multivariate analyses of data from the National Survey of Bereaved People in England, 2013.

View the report.


Head, hands and heart: asset-based approaches in health care Report

18 May 2015

The Health Foundation Inspiring Improvement have launched a new report, Head, hands and heart: asset-based approaches in health care. This report summarises the theory and evidence behind asset-based approaches in health care and wellbeing and gives details of six case studies, describing these approaches in action.

View the report.


The public health knowledge and intelligence workforce: A study

12 March 2015

The Centre for Workforce Intelligence has published the public health knowledge and intelligence report: a study. The report was commissioned by Public Health England (PHE) in partnership with Health Education England and the Department of Health, and aims to build a clearer understanding of the location, number, functions, skills and competences of the public health knowledge and intelligence workforce. 


New Marie Curie survey 

9 March 2015

A new survey by Marie Curie, released to coincide with the launch of the Marie Curie Great Daffodil Appeal, has revealed the top concerns people would have if they were faced with caring for a loved one with a terminal illness. Half (50%) of UK adults say that their loved one’s pain not being managed would be a top concern, followed closely by not having access to 24/7 care and support (44%).

More information is available on the Marie Curie Cancer Care website.


Call for national choice offer

9 March 2015

A report ‘What’s important to me: A review of Choice in End of Life Care’ was published in February by the Choice in End of Life Care Review Board, which was chaired by the National Council for Palliative Care (NCPC) Chief Executive, Claire Henry. It offers a blueprint for how greater choice in end of life can be achieved. 

More information is available on NCPC's website.


Individual-level data collection Consultation

2 March 2015

Public Health England has published a consultation on plans to introduce a new national individual-level data collection from specialist palliative care services to support improvements in palliative and end of life care.

The proposed data collection includes demographic details, activity information and patient outcomes data. This data will also support the requirements of a palliative care currency. Please click here to find out further information, view the proposed data items and to respond to the online survey. We welcome your feedback.

The consultation will close at 5pm on Friday 27 March 2015.


End of Life Care Co-ordination (ISB1580) Consultation

2 March 2015

Public Health England has published a consultation on proposed changes to the national  information standard for End of Life Care Co-ordination: core content (ISB1580).

This standard specifies the data items to be held in Electronic Palliative Care Co-ordination Systems (EPaCCS) and supports implementation. The proposed changes are in response to feedback from implementers and key stakeholders and to national policy change. Please click here to find out further information and to respond to the online survey. We welcome your feedback.

The consultation will close at 5pm on Friday 27 March 2015.

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