News

See also the Public Health England website. 

New end of life care information and training webpages launched

4 July 2016

NHS Employers have been working with Health Education England on a new programme of work which aims to support organisations to invest in the continuing professional development (CPD) and capacity building of staff in order to deliver high quality end of life care.

The end of life care webpages have a wealth of information and resources including:

an overview of end-of-life carea comprehensive list of e-learning resources to support staff with trainingA case study with Worcestershire Acute Hospitals Trust on how it has implemented mandatory end-of-life-care training within the trusttools to implement an end-of-life care strategy in your organisation

View NHS Employers website.


Research shows patient-centred outcome measures improve emotional wellbeing of patients

4 July 2016

The Cicely Saunders Institute have published an article in e-hospice. They report that professionals in palliative care can find it difficult to measure the impact of their care, especially when treating the complex symptoms and concerns of people with advanced or progressive illnesses.

For more information read the Cicely Saunder Institute article in ehospice.


Compassion in Dying launches free website for advance care planning

4 July 2016

Compassion in Dying has launched a free website to help people plan ahead for their future treatment and care. Jennifer Noel from Compassion in Dying tells us more about this service.

MyDecisions (www.MyDecisions.org.uk) is a website that allows people to draft an advance decision to refuse treatment or an advance statement online for free.

More information is available on the Compassion in Dying website.


Exposing the reality of end of life care for lesbian, gay, bisexual and transgender people

4 July 2016

Marie Curie have published a new report called ‘Hiding who I am: Exposing the reality of end of life care for LGBT people’. The report highlights the barriers faced by lesbian, gay, bisexual and transgender (LGBT) people in getting support at the end of life.

The full report can be downloaded from the Marie Curie website.


Hospice UK publish new report ‘A low priority? How local health and care plans overlook the needs of dying people’

20 May 2016

Hospice UK have published a new report on the priority of palliative and end of life care in local health and care need assessments and strategies. The report investigates how health and wellbeing boards (HWBs) and clinical commissioning groups (CCGs) address the palliative and end of life care needs of local people within their planning and decision-making.

The full report and appendices can be downloaded from the Hospice UK website.


Dying Matters Awareness Week

9 May 2016

Dying Matters Awareness Week runs from Monday 9 May to Sunday 15 May and their theme is The Big Conversation. Follow on social media using the hashtag #BigConversation.

There will be Tweet Chats every day during Dying Matters Awareness Week on Twitter between 1-2pm. There will be themes around death, dying and bereavement. Whether you have questions or could offers answers, please join in.

For more information on Dying Matters Awareness Week, visit Dying Matters.


Care Quality Commission publish a new report ‘A different ending: End of life care review’

9 May 2016

The Care Quality Commission (CQC) have published their report ‘A different ending: End of life care review’.

Download the report from the CQC's website.


National Council for Palliative Care publish a new report ‘Staff prepared to care?’

9 May 2016

The National Council for Palliative Care (NCPC) have published a new report ‘Staff prepared to care? Capacity and competence in the end of life care workforce’.

Download the report from NCPC's website.


Marie Curie annual palliative care research conference – call for abstracts

9 May 2016

Marie Curie is inviting abstracts for short presentations and posters on palliative and end of life care research ahead of its annual research conference, held jointly with the Palliative Care Section of the Royal Society of Medicine.

The aim of the conference, being held at the Royal Society of Medicine in London on 19 October 2016, is to support the translation of research findings into practice.

Abstracts should be no more than 250 words (excluding title, authors and affiliations) and in the following format: Introduction, Aim(s) and Method(s), Results, Conclusion(s).

The deadline for submitting abstracts is 17 June 2016. Further information on the conference and details of how to submit an abstract can be found on the Marie Curie website.


2015 National Survey of Bereaved People now available

9 May 2016

The Office for National Statistics (ONS) has published the results of the 2015 National Survey of Bereaved People.

Download the full survey report from the ONS website.


Improving palliative and end of life care

9 May 2016

NHS England’s Sustainable Improvement Team has recently refreshed the toolkit ‘Commissioning person centred end of life care’, which provides a valuable supporting resource for the commissioning process and an interactive directory of current tools. To complement this, NHS England’s ‘Specialist Level Palliative Care: Information for commissioners’ outlines a key part of the strategic and responsive commissioning system for delivering palliative and end of life care in any care setting.

Download Commissioning person centred end of life care.

Download Specialist Level Palliative Care Information for commissioners.

For more detailed information please refer to: NHS England » Realising ambitions: improving palliative and end of life care for all in three steps – Dr Sarah Mitchell.


NHS England’s independent evaluation of Electronic Palliative Care Coordination Systems (EPaCCS)

9 May 2016

NHS England’s Sustainable Improvement Team commissioned an Independent evaluation of Electronic Palliative Care Coordination Systems (EPaCCS). It was undertaken by Whole Systems Partnership (WSP) between November 2015 and March 2016.

For more information and to download the report, visit NHS England’s website.


Joint statement from PHE and NHS England on the Palliative Care Clinical Data Set and Palliative Care Currencies

5 April 2016

Public Health England and NHS England have published a joint statement to update on the development of the Palliative Care Clinical Data Set and Palliative Care Currencies.

Download the statement here.


Updated End of Life Care Profiles

5 April 2016

The place of death, and cause of death statistics available in the End of Life Care Profile have been updated with 2014 data, the most recent available from ONS.

The profile contains a range of indicators relevant to end of life care for LAs and CCGs; in addition to place and cause of death statistics these include indicators of dementia prevalence, care home admissions, nursing home populations and delayed transfers of care

Visit the End of Life Care Profiles for more information.


Updated Death in Usual Place of Residence Statistics

5 April 2016

An update of place of death has been released. This data is produced by the Office of National Statistics and includes the key indicator Death in Usual Place of Residence (DiUPR), and place of occurrence data (hospital, home, care home, hospice or elsewhere) each of which are available for various geographies including Local Authorities (LA) and Clinical Commissioning Groups (CCG). The most recent data is now for the 12 months including September 2015 on the public website, or December 2015 for registered users.

There has been a minor change in the definition of the place of occurrence statistics, although the DiUPR remains unchanged; see website for more details.


Paper: Factors associated with hospital deaths in the oldest old: a cross sectional (Pocock et al)

4 April 2016

To study associations between the likelihood of hospital death with patient demographics, cause of death and co-morbidities for people aged ≥85 at death who have been previously admitted (within 12 months of death) to hospital.

Download the paper.


End of Life Care Audit – Dying in Hospital: National report for England 2016

4 April 2016

The End of Life Care Audit – Dying in Hospital: National report for England 2016 presents the results of the second biennial national audit of care of the dying in hospitals in England. This second round of audit is based on data collected during 2015 from two lines of enquiry – an organisational audit of services, as well as a case note clinical audit. An executive summary, which summarises the key findings and recommendations as presented in the full national report is also available to download.


Compassion in dying launch My Decisions

4 April 2016

Compassion in Dying (CiD) has launched MyDecisions - the UK’s first website that allows patients to draft an Advance Decision or Advance Statement online for free.

www.MyDecisions.org.uk was created in response to the growing concerns surrounding low numbers of individuals planning ahead for their future treatment and care, should they lose capacity.


New resource to help people benefit from social work at the end of their life

23 March 2016

A new resource that aims to ensure that people benefit from good social work at the end of their lives has been published by the Association of Palliative Care Social Workers and the British Association of Social Workers.

The resource outlines what palliative care social work involves, sets out the skills and knowledge that palliative care social workers should have, and makes suggestions of steps that people can take to ensure that everyone can get more out of palliative care social work.

It is available to download from the Association of Palliative Care Social Workers website.


Life expectancy: recent trends in older ages

17 February 2016

This report summarises the relevant trends and provides some context for those trying to assess the significance of recent apparent changes.

The report confirms an overall upward trend in life expectancy in this age group in England since the early 1980s.

Download the report.


End of Life Care Profiles updated on Fingertips

2 February 2016

On 2 February 2016, dementia-specific indicators were added to the End of Life Care Profiles. They include directly standardised mortality rates, death in usual place of residence, place of death, etc. for people who died with a diagnosis of dementia. They are presented at CCG and County/Unitary Authority levels.

You can view the profiles on PHE’s Fingertips platform.

More dementia related indicators are available in Public Health England’s (PHE’s) Dementia Profile, also available on Fingertips.


Faith at end of life: a resource for professionals, providers and commissioners working in communities

1 February 2016

This resource aims to help frontline professionals and providers working in community settings and commissioners maintain a holistic approach to the people dying, caring or bereaved.

It provides information to help ensure that commissioning and delivery of services and practice takes account of spiritual needs of the largest six faith groups in England and remains appropriate to the community setting in which they work.

Download the report: Faith at end of life: a resource for professionals, providers and commissioners working in communities.


Update to Palliative Care Co-ordination: core content (SCCI1580)

25 January 2016

The following supplemental information has been identified in relation to SCCI1580 Amd 11/2015 Palliative Care Co-ordination: core content published on 18 September 2015:

  • confirmation of the release of terminology codes
  • impact of the uplift of SNOMED CT to the international edition
  • clarification of interoperability requirements on behalf of NHS England.

Details can be found in a corrigendum, which is published on the Health and Social Care Information Centre (HSCIC) website.


Marie Curie publishes new research impact report

22 January 2016

Marie Curie has launched its first research impact report, From research to policy and practice.  The report showcases how their investment in palliative and end of life care research is helping improve care for people living with a terminal illness throughout the UK.

Download the full report from the Marie Curie website.

Archive news

End of Life Care Profiles
Resources
Data Sources
Advice and information
Validates against XHTML 1.0   Cascading stylesheet compliance   Single A Accessibility compliance