Useful links

Links to the main organisations working in end of life care, including palliative care associations, hospices, disease specific sites, social care organisations and government organisations and agencies.

You can find information on the National End of Life Care Programme, including links to other organisations, which may not be covered here, by visiting their website.

We will be adding to this list and if you have any suggestions for links you feel we should include, please don't hesitate to let us know using the Feedback Form.

The useful links are organised into the following categories:

Carers

Government and regulatory

Health-related sites

Hospices

International Palliative Care Associations

Older people

UK and Ireland palliative care associations

Carers

Carers Federation

Crossroads Care

The Princess Royal Trust for Carers

Government and regulatory

Care Quality Commission

Centre for Public Scrutiny

Centre for Workforce Intelligence

Commission on the Funding of Care and Support

Social Care Institute for Excellence

NICE (National Institute for Health and Clinical Excellence)

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Health-related

Association of Public Health Observatories

Alzheimer's Disease Society

British Heart Foundation

Chronic Kidney Disease Profiles

Cystic Fibrosis Trust

Macmillan Cancer Support

Marie Curie 

Motor Neurone Disease Association 

Multiple Sclerosis Society 

National Aids Trust 

National Cancer Action Team

National Cancer Intelligence Network

Parkinson's Disease Society of the United Kingdom 

Scottish Motor Neurone Disease Association 

Terrence Higgins Trust

UK Association of Cancer Registries

UK Renal Registry

NHS Diabetes and Kidney Care

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Hospices

Help the Hospices

Irish Hospice Foundation

International palliative care associations

African Palliative Care Association

The Canadian Hospice Palliative Care Association

European Association for Palliative Care 

Hospice Friendly Hospitals

Hospice Palliative Care Association of South Africa

International Association for Hospice and Palliative Care 

National Hospice & Palliative Care Organisation USA

Palliative Care Australia

Palliative Info

World Health Organisation (WHO) Cancer Pain Relief

Older people

Age UK (formerly Age Concern and Help the Aged)

Older People Profiles for England

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UK and Ireland palliative care associations

ACT 

Association for Palliative Medicine of Great Britain and Ireland 

National Council for Palliative Care 

Scottish Partnership for Palliative Care 

Sue Ryder Care

The National Care Forum

 

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