Useful links

Last updated January 2018

Links to the main organisations working in end of life care, including palliative care associations, hospices, disease specific sites, social care organisations and government organisations and agencies.

The useful links are organised into the following categories:


Government and regulatory

Health-related sites


International Palliative Care Associations

Older people

UK and Ireland palliative care associations

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Carers Federation

Carers Trust

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Government and regulatory

Care Quality Commission

Centre for Public Scrutiny

Healthcare Improvement Scotland

Social Care Institute for Excellence

NHS Employers End of Life Care

NICE (National Institute for Health and Clinical Excellence)

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Alzheimer's Disease Society

British Heart Foundation

Cystic Fibrosis Trust

Macmillan Cancer Support

Marie Curie Cancer Care

Motor Neurone Disease Association 

Multiple Sclerosis Society 

National Aids Trust 

National Cancer Registration and Analysis Service

Parkinson's UK

Scottish Motor Neurone Disease Association 

Terrence Higgins Trust

UK Renal Registry

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Hospice UK

Irish Hospice Foundation

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International palliative care associations

African Palliative Care Association

The Canadian Hospice Palliative Care Association

European Association for Palliative Care 

Hospice Palliative Care Association of South Africa

International Association for Hospice and Palliative Care 

National Hospice & Palliative Care Organisation USA

Palliative Care Australia

Palliative Info

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Older people

Age UK (formerly Age Concern and Help the Aged)

Older people profiles for England

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UK and Ireland palliative care associations

Association of Palliative Medicine of Great Britain and Ireland

National Council for Palliative Care 

Scottish Partnership for Palliative Care 

Sue Ryder Care

The National Care Forum

Together for short lives

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End of Life Care Profiles
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Advice and information
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