Research

Future plans for this page include the addition of current research in the field of end of life care. In the meantime if you are currently undertaking any research in this field, which you would like to share with the research community, please contact us using the Feedback Form.

If you have any suggestions for organisations, journals or current research you feel we should include, please don't hesitate to let us know using the Feedback Form.

Research organisations

Journals

Conference abstracts

Research organisations

Alzheimer's Society research team

The team coordinates the research programme, liaising with scientists, managing the Quality Research in Dementia (QRD) network and ensuring that dementia research and science is communicated correctly.

Bradford Dementia Group

A multi-disciplinary, multi-professional group, committed to making a difference to policy and practice in dementia care, through excellence in research, education and training.

Cancer Experience Collaborative

Aims to develop high quality programmes of research. Preliminary areas of work include - older adults’ priorities in end of life care, end of life care decision making, preferences for place of care and involvement of older adults in the design of palliative care interventions.

Cancer Palliative & End of Life Care (CPELC)

CPELC carry out research to enhance the lives of individuals affected by cancer, other life-limited conditions and those at the end of life.

Centre for Death and Society (CDAS)

The UK's only centre devoted to the study and research of social aspects of death, dying and bereavement. CDAS acts as a catalyst and facilitator for research, education and training, policy development, media and community awareness.

Cicely Saunders Institute for Palliative Care

Carries out research, teaching and training in palliative care. It has made an important contribution to the understanding of end of life care and helped to inform the recent End of Life Care Strategy.

Fuse: The Centre for Translational Research in Public Health

Incorporating A Good Death - Regional Advisory Group for the North East.

Hospice History Programme

Carries out historical work in hospice and palliative care and related areas. The Programme has developed and built on expertise in recording and documenting history and safeguarding and cataloguing archival records.

International Observatory on End of Life Care

Undertakes high quality research, clinical studies, evaluation, education, advocacy and consultancy to improve palliative and end of life care for patients and family carers. The Observatory works closely with the local health and social care community in the North West, as well as nationally and internationally.

King's Fund

The King’s Fund is working with Marie Curie Cancer Care to evaluate its Delivering Choice Programme. The programme aims to develop services that help patients to make free and informed choices about where they're treated and where they wish to die.

Map 2030

Modelling ageing populations to 2030 study at the London School of Economics and Political Science. This inter-disciplinary group, covering a number of institutions, is investigating the needs and resources of older people to 2030.

Marie Curie Palliative Care Institute Liverpool

The Institute has a core commitment to undertake research in the care of the dying. Their major focus is on developing studies that impact directly on patient care, service organisation and delivery and education and training, with a view to influencing future policy.

National Cancer Research Institute

The National Cancer Research Institute (NCRI) is a UK-wide partnership between the government, charity and industry which promotes co-operation in cancer research among the 21 member organisations for the benefit of patients, the public and the scientific community.

National Cancer Research Institute Grantsmanship Gateway

The NCRI Survivorship After Cancer and End of Life Care Research Grantsmanship Gateway aims to assist early career researchers in the survivorship after cancer and end of life care fields by signposting towards expert advice on grant application development.

National Council for Palliative Care

The National Council for Palliative Care (NCPC) is the umbrella organisation for all those who are involved in providing, commissioning and using palliative care and hospice services in England, Wales and Northern Ireland.

National End of Life Care Programme

The National End of Life Care Programme works with health and social care services across all sectors in England to improve end of life care for adults by implementing the Department of Health’s End of Life Care Strategy.

NHS National Institute for Health Research (NIHR)

Including Collaborations for Leadership in Applied Health Research and Care (CLAHRC). Nine NIHR Collaborations for Leadership in Applied Health Research and Care (CLAHRCs) have been established to undertake high quality applied health research focused on the needs of patients and to support the translation of research evidence into practice in the NHS.

OMEGA - The National Association for End of Life Care

Aims to promote excellence in care, for people nearing the end of their lives. The Association developed from and is closely aligned with the work of the National Gold Standards Framework (GSF) Centre, but has a broader remit in end of life care, supporting carers, raising awareness and sharing information about a range of end of life issues and bringing people together to share ideas and develop best practice.

Palliative Care Research Society

Dedicated to promoting research into all aspects of palliative care and to facilitating its dissemination. Membership of the society is open to any individual or organisation who is interested in furthering the society's aims.

Personal Social Services Research Unit (PSSRU)

Overview of research, projects and publications in social care, includes cost, quality and outcomes.

Policy Research Institute on Ageing and Ethnicity (PRIAE)

PRIAE’s vision is to make a difference towards an improved quality of life for all black and minority ethnic elders.

Primary Palliative Care Research Group: Centre for population health sciences

A multi-disciplinary team with experience and expertise is in seeking patient and carer perspectives using qualitative methods and integrating these with professional views in order to make recommendations for service development.

Royal Society of Medicine – Palliative Care Section

Aims to promote a scientific approach to and understanding of the palliative management of patients, their families and carers.

Social Policy Research Unit: University of York

The Social Policy Research Unit has an international reputation for excellence in research in social policy, especially health and social care, poverty, welfare and social work.

Sue Ryder Care Centre for Palliative and End of Life Studies

The Centre has a special collaborative relationship with the charity Sue Ryder Care. The Centre is led by Professor Jane Seymour and its work makes a vital contribution to the wider research group of which it is a part.

University of Cambridge: Cancer, Genetics and Palliative Care Group

Headed by Dr Fiona Walter and Dr Stephen Barclay, the group focuses on developing and evaluating primary care based interventions to improve health, the progress of long term conditions and care at the end of life.

Back to top