This page was last updated in 2013. A more recent signposting guide has been published by NEoLCIN Palliative and end of life care resources guide

Table showing data sources on carers
Area of interestLocation of data

Attendance Allowance

Attendance Allowance is payable to people over the age of 65 who are so severely disabled, physically or mentally, that they need a great deal of help with personal care or supervision.

Department for Work and Pensions

Carers Allowance

Carers Allowance (CA) is a non-contributory benefit for men and women who look after a severely disabled person for at least 35 hours a week, are not gainfully employed (i.e. not earning more than £79 per week after certain deductions) and not in full-time education.

Department for Work and Pensions

General health of providers of unpaid care: percent, all ages, P

Information on the general health of providers of unpaid care was collected as part of the 2001 Census.

Health & Social Care Information Centre Indicator Portal

Information can be found by using the search function for P00892.

Direct payments: Carers caring for adults. Carers receiving  direct payments during the year (H3.1-H4)

Direct payments for carers are made available to carers who have been assessed as needing help in their caring role. This includes support that may help maintain their health and well-being.

Follow this link:

Personal Social Services expenditure and unit costs: England - 2009-10 - Final Council Data

Then scroll down and click on the Excel spreadsheet 'Final Council Level Activity 2009-10'.

Survey of carers in households – 2009/10 England

A detailed survey of carers in households  in 2009/10 commissioned by the Department of Health as part of the Government’s Carers’ Strategy programme.  Information includes: demographic profile of carers, impact of caring duties on the carer, details of the services carers receive and a profile of cared for people.

Health and Social Care Information Centre

Unpaid care

People providing unpaid care or support to family members, friends, neighbours or others because of long-term physical or mental health or disability or problems related to old age. This data was collected as part of the 2001 Census.

Office for National Statistics

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